Sinopse

Casual conversations with purpose featuring interesting, inspiring, and innovative people from a variety of backgrounds, experiences, and industries. Everyone has a story to share, and every story is worth sharing. There's no pressure, we're just talking.

Episódios

  • Episode 490 - With Stacey Simms

    Episode 490 - With Stacey Simms

    05/03/2019 Duração: 35min

    Stacey Simms returns to the podcast to recap Diabetes Podcast Week, discuss the opportunities for new podcasters to engage in the medium, and her perspective on the hybrid closed loop technology for people with diabetes, and their caregivers. Keep up with Stacey's podcast, Diabetes Connections, at diabetes-connections.com. Run Time - 35:32 Send your feedback to [email protected]

  • Episode 489 - With Kerri Sparling

    Episode 489 - With Kerri Sparling

    26/02/2019 Duração: 43min

    Kerri Sparling returns to the podcast to talk about the end of her blogging adventure, the exciting future of hybrid closed loop technology, mourning her cat Siah, and the wonderful rabbit hole of random top level domains. While it's still a thing, you can read Kerri's diabetes musings at sixuntilme.com, and follow Kerri on Twitter @sixunitlme. Run Time - 43:01 Send your feedback to [email protected]

  • Episode 488 - With Pamela Jessen

    Episode 488 - With Pamela Jessen

    19/02/2019 Duração: 31min

    This week I'm joined by Pamela Jessen for a conversation about her life with multiple chronic conditions including trigeminal neuralgia, fibromyalgia, and chronic fatigue. We also discuss her perspective on the ongoing stigma surrounding patients living with an invisible illness. Keep up with Pamela's advocacy efforts at pamelajessen.com. Run Time - 31:02 Send your feedback to [email protected]  

  • Episode 487 - With Katie DiSimone

    Episode 487 - With Katie DiSimone

    12/02/2019 Duração: 51min

    It's Diabetes Podcast Week! Katie DiSimone joins me for a chat about working together at Tidepool, finding an opportunity to give back to the diabetes community with Loop Docs, and navigating the tricky balance of parenting a teen with diabetes. Keep up with Katie's work and writing at seemycgm.com. For more information about DIY Loop, visit loopdocs.org and looptips.org. As part of Diabetes Podcast Week, listeners are encouraged to visit lfacinternational.org/sparearose to make a donation to a child with diabetes in need. A $5 donation can provide 1 month of life for a child with diabetes. Thanks for your generosity. Run Time - 51:29 Send your feedback to [email protected]

  • Episode 486 - With MarlaJan Wexler

    Episode 486 - With MarlaJan Wexler

    05/02/2019 Duração: 26min

    This week I'm joined by MarlaJan Wexler for a conversation about her life with multiple chronic illnesses including a heart defect that resulted in low oxygen for years and lupus. We also discuss the evolution of her patient advocacy platform, her decision to become a registered nurse, and liberal use of humor to connect with others and cope with medical shenanigans. Keep up with MarlaJan's advocacy efforts at luckfupus.com and on Instagram @marlajan. Run Time - 26:00 Send your feedback to [email protected]

  • Episode 485 - With Barby Ingle

    Episode 485 - With Barby Ingle

    29/01/2019 Duração: 37min

    Barby Ingle joins me this week for a conversation about living with endomitriosis and reflex sympathy disorder, the ongoing stigma facing women with chronic pain, creating the International Pain Foundation, and preparing for the upcoming International Pain Summit. Learn more about the International Pain Foundation at internationalpain.org. Run Time - 37:15 Send your feedback to [email protected]

  • Episode 484 - With Megan Elizabeth Lewellyn

    Episode 484 - With Megan Elizabeth Lewellyn

    22/01/2019 Duração: 37min

    This week I'm joined by Megan Elizabeth Lewellyn for a conversation about life with multiple sclerosis, battling the stigma of perception around medical marijuana, becoming an advocate for cannabis as a valid treatment option, and her book, "Segway into my new life". Follow Meg's advocacy efforts at bbhwithms.com. Run Time - 37:20 Send your feedback to [email protected]

  • Episode 483 - With Bonita Shelby

    Episode 483 - With Bonita Shelby

    15/01/2019 Duração: 29min

    Bonita Shelby joins me for a conversation about facing threatening health challenges, battling breast cancer, finding a balance between traditional and conventional therapies, and the value in humor in the face of adversity. Keep up with Bonita at divinehealthchoices.com. Run Time - 29:54 Send your feedback to [email protected]

  • Episode 482 - With Christalle Bodiford

    Episode 482 - With Christalle Bodiford

    09/01/2019 Duração: 42min

    This week I'm joined by Christalle Bodiford for a conversation about living with epilepsy, the challenges of a misdiagnosis, the relief when a proper diagnosis is received, battling stigma, and creating a nonprofit organization in Life Elektrik to promote epilepsy support, education, and advocacy. Learn more about Life Elektrik at lifeelektrik.com and follow Christalle on Instagram at @christallebodiford. Run Time - 42:44 Send your feedback to [email protected]  

  • Episode 481 - With Rebecca Pine

    Episode 481 - With Rebecca Pine

    01/01/2019 Duração: 30min

    Happy New Year! Rebecca Pine joins me this week to talk about her breast cancer diagnosis, weighing the social and personal implications of breast reconstruction surgery, and co-founding The Breast and the Sea, a written and photographic project empowering breast cancer survivors. Keep up with Rebecca at rebeccapine.com and thebreastandthesea.com. Run Time - 30:43 Send your feedback to [email protected]

  • Episode 480 - With Lydia Beier

    Episode 480 - With Lydia Beier

    25/12/2018 Duração: 26min

    Lydia Beier joins me for a conversation about living with depression and bipolar disorder, the challenges and opportunities that come with battling mental health stigma, and the value of starting a conversation to make a difference in people's lives. Keep up with Lydia at beinglydia.com and chronicillnessbloggers.com. Run Time - 26:58 Send your feedback to [email protected]

  • Episode 479 - With Jen Loving

    Episode 479 - With Jen Loving

    18/12/2018 Duração: 31min

    Jen Loving joins me for a conversation about raising multiple children with diabetes, navigating a hemophilia diagnosis, exhibiting self care through creative hair styles, and the positive impact you can make on the world by sharing your story. Follow Jen on Twitter at @jloveblueshoe and thelovingchronicles.blogspot.com. Run Time - 31:29 Send your feedback to [email protected]  

  • Episode 478 - With Peggy Stephens

    Episode 478 - With Peggy Stephens

    11/12/2018 Duração: 34min

    This week I'm joined by Peggy Stephens for a conversation about inflammatory breast cancer, the challenge of rapidly understanding urgent treatment options, working with the Inflammatory Breast Cancer Foundation, and creating strong and effective advocacy and awareness campaigns for IBC. Learn more about the Inflammatory Breast Cancer Foundation at eraseibc.org. Erase IBC was featured in the Fall 2018 issue of Breast Cancer Wellness Magazine, read the feature at breastcancerwellness.org. Run Time - 34:05 Send your feedback to [email protected]  

  • Episode 477 - With Angela Cohen

    Episode 477 - With Angela Cohen

    04/12/2018 Duração: 41min

    Angela Cohen joins me this week to talk about her life with multiple chronic conditions, finding time for self care, defining a unique voice in patient advocacy, and the importance of empathy and shared experiences. Follow Angela on Twitter @angelee828. Run Time - 41:47 Send your feedback to [email protected]

  • Episode 476 - With Carin Anderson

    Episode 476 - With Carin Anderson

    27/11/2018 Duração: 36min

    Carin Anderson joins me this week for a conversation about aortic disease, navigating a complicated world of terminology and treatment options and outcomes, growing a small outreach initiative into a widely respected and recognized nonprofit organization, and the complexity of invisible illness and disability. Learn more about Aortic Hope at aortichope.org and follow Chrisa on Twitter @AorticHope. Run Time - 36:10 Send your feedback to [email protected]

  • Episode 475 - With Chrisa Hickey

    Episode 475 - With Chrisa Hickey

    20/11/2018 Duração: 33min

    This week I'm joined by Chrisa Hickey for a conversation about childhood mental illness, fighting mental health stigma, navigating the Special Education system, sibling issues, and parental self-care. Trigger Warning: Suicide. Learn more about Chrisa's story and advocacy efforts at themindstorm.net and follow Chrisa on Twitter @Chrisa_Hickey. Run Time - 33:32 Send your feedback to [email protected]

  • Episode 474 - With Becky Brandt

    Episode 474 - With Becky Brandt

    13/11/2018 Duração: 31min

    Becky Brandt joins me this week for a conversation about central pain syndrome, battling stigma, creating an online resource for world in the Central Pain Nerve Center, and carving a unique path in patient advocacy on behalf of people living with central pain syndrome. Learn more about central pain nerve syndrome at centralpainnervecenter.com and follow Becky on Twitter @bbhomebody. Run Time - 31:12 Send your feedback to [email protected]

  • Episode 473 - With Michele Hillman

    Episode 473 - With Michele Hillman

    07/11/2018 Duração: 43min

    This week I'm joined by Michele Hillman for a conversation about her son's multiple misdiagnosis adventures, understanding the impact of strabismus eye surgery for a 22-month old child, gaining an appreciation for how vision impacts development, the value of vision therapy, and channeling a path for empathy and patient advocacy through story-sharing. Michele's advocacy efforts are best followed on her Facebook page. Learn more about vision therapy at covd.org. Run Time - 43:41 Send your feedback to [email protected]

  • Episode 472 - With Kathy Young

    Episode 472 - With Kathy Young

    30/10/2018 Duração: 36min

    Kathy Young joins me for a lively discussion about her life with multiple sclerosis, finding her voice in patient advocacy through her blog and podcast, and advocating for patient advocates to get fairly compensated for their time. Learn more about Kathy's advocacy efforts fumsnow.com and Patients Getting Paid. Run Time - 36:37 Send your feedback to [email protected]

  • Episode 471 - With Kelly Crabb

    Episode 471 - With Kelly Crabb

    23/10/2018 Duração: 35min

    This week I'm joined by Kelly Crabb for a conversation about her life with Crohn's Disease, finding her voice as a patient advocate, her stamina as a runner, and her community through the Purple Project. Follow Kelly's advocacy efforts on Twitter @girlsgotguts and Facebook @kellyontherun. Run Time - 35:03 Send your feedback to [email protected]

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