Help 4 Hd Live!

Informações:

Sinopse

Welcome to Help4HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help4HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through a generous communications grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with you own physician for advice about any medical recommendation.

Episódios

  • HD Gratitude Day

    21/03/2024 Duração: 08min

    Please visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.

  • Samantha Decker

    14/03/2024 Duração: 27min

    Samantha and I got to participate in a focus group together. Here our thoughts about research and more!!

  • HDYO Ambassadors Series: Ep 1. with Robyn

    29/02/2024 Duração: 27min

    HDYO Ambassadors Series: Ep 1. with Robyn

  • HD Uncut, Ep. 12, with John Howard

    22/02/2024 Duração: 26min

    Happy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the HD Community.

  • Layers of Love with Dave, Susie and Erika

    15/02/2024 Duração: 43min

    Happy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with HD, how they found each other, and how they continue to support one another while caring for their kids with HD. To watch more webinars from the "Rare Topics for a Rare Disease" Series, please visit HD Reach's website here.

  • "We Exist" with Tanita Allen

    08/02/2024 Duração: 27min

    To follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We Exist

  • DNA Repair in HD with Dr. Joseph Hamilton

    01/02/2024 Duração: 28min

    Please visit the Hereditary Disease Foundation website to find out more information.

  • @thehdhun with Charlotte

    25/01/2024 Duração: 24min

    If you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click Here

  • HD Uncut, Ep. 11, with Dina De Sousa

    18/01/2024 Duração: 34min

    HD Uncut, Ep. 11, with Dina De Sousa

  • HD Charge with Dr. Jamie Hamilton

    11/01/2024 Duração: 38min

    Jamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease. 

  • Greater than HD in 2024

    04/01/2024 Duração: 27min

    Greater than HD in 2024

  • HD Uncut, Ep. 10 with Leah

    28/12/2023 Duração: 50min

    HD Uncut, Ep. 10 with Leah

  • Livable Lives with Christy Dearien

    21/12/2023 Duração: 21min

    If you'd like to follow Christy on social media, you can find her here:  Facebook - www.facebook.com/ChristyDearien Instagram - @christydearien

  • Welcome to Help 4 HD, Anna Lunsford!

    14/12/2023 Duração: 19min

    If you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also send it directly to her email at [email protected] 

  • Help 4 HD 2023 with Katie and Katrina

    07/12/2023 Duração: 26min

    For more information about all that Help 4 HD is doing, please visit the website - www.help4hd.org

  • Coping During the Holidays with Melissa W.

    30/11/2023 Duração: 55min

    Coping During the Holidays with Melissa W.

  • HD Uncut Series, Ep. 9

    16/11/2023 Duração: 34min

    Lauren shares her feelings about the holidays and her recent birthday.

  • Vico Therapeutics

    09/11/2023 Duração: 23min

    Dr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.

  • HD Community Advisory Board with Jenna Heilman

    26/10/2023 Duração: 40min

    If you'd like to learn more about HD-CAB, including how to become a member, please visit the website here. You can also contact Jenna Heilman at [email protected]

  • HD Mythbusters: Generation HD2

    12/10/2023 Duração: 43min

    Rita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, being responsible for developing the protocol and study set up. Before USMA, Rita was in the Product Development OMNI LEAD safety group as Safety Medical Director leading the safety strategy for the initiation and execution of a number of therapeutic areas including the anti-tau molecule semorinemab. Rita obtained her undergraduate degree in theology and biology from University of Rochester, and her Medical Degree at Southern Illinois University School of Medicine. She completed her internship at Illinois Advocate Masonic hospital in Chicago, a year of Physical Medicine and Rehabilitation at Stanford and neurology residency at the University of California, San Diego. She has an additional neurology subspecialty training in movement disorders from Georgetown University. S

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