Bsp Podcast

Season five of our podcast continues with another presentation from our 2020 annual conference: ‘Engaged Phenomenology’ Online. This episode features a presentation written by Mary Fridley & Susan Massad, with Gwen Lowenheim presenting for Susan Massad, all from The East Side Institute, New York City.   ABSTRACT: As viewed through a biomedical lens – which remains the dominant way in which dementia is seen – Alzheimer’s and related dementias (ADRD) is seen primarily as a condition of loss of capabilities within an individual: of speech, of cognitive abilities, of physical capacities and, eventually, of life while research and treatment is directed toward cure of the  individual. Dementia activists across the globe are now raising the question: Is the shame, stigma, and isolation that people with ADRD and their families experience in large part a result of this very narrow lenses through which dementia is understood? In this paper we will present on the Joy of Dementia (You’ve Got to Be Kiddin!) project,